Pediatric Ophthalmology Internet References

Suggested Pediatric Ophthalmology Internet References

General (Genl) sites are usually written and organized to be easier to understand for a wider reading audience. Medical (Med) sites are usually directed toward healthcare workers such as physicians, nurses, and pharmacists - but others may find interesting details to complement information from the general sites. Some sites contain information for both general and medical audiences and are noted as such.

Topic	Genl	Med	Brief description of linked websites
Achromatopsia	X		AAPOS medical library Q&A
Albinism		X	Comprehensive eMedicine article with information on systemic associations
Albinism	X		National Organization for Albinism and Hypopigmentation (NOAH) website
Amblyopia		X	Comprehensive eMedicine article with evidence-based information on treatment
Amblyopia	X		Prevent Blindness America site with information, resources, web forum for parents and patients
Amblyopia	X		AAPOS medical library Q&A
Aniridia	X		Aniridia Network, supporting people with aniridia and their families
Aniridia		X	Comprehensive eMedicine article with coverage of management
Anisocoria	X		AAPOS medical library Q&A
Anisocoria		X	Clinician-oriented eMedicine article covering the different causes and diagnosis
Astigmatism	X		User-friendly patient site explaining refractive errors (may need to install Adobe Flash for animation)
Blepharitis		X	Comprehensive eMedicine article
Blepharitis	X		Easy to understand information page with tips for management of the condition from the Kellogg Eye Center
Blinking	X		Medline Plus summary page on facial tics
Blinking	X		National Institute of Health information page on pediatric OCD, PANDAS
Brown syndrome	X		AAPOS medical library Q&A
Brown syndrome		X	Clinician-oriented, comprehensive eMedicine article
Capillary hemangioma	X		AAPOS medical library Q&A
Capillary hemangioma		X	Comprehensive eMedicine topic page with evidence-based information on treatment
Cataract, congenital	X		AAPOS medical library Q&A
Cataract, congenital		X	Thorough eMedicine article covering etiologies, evaluation/diagnosis, management
Chalazion (stye)	X		AAPOS medical library Q&A
Chalazion/hordeolum (stye)		X	eMedicine topic page geared towards the emergency room provider
Children’s eye site	X		Interactive website based in the Netherlands with educational modules, games for children
Coloboma	X		AAPOS medical library Q&A
Coloboma, iris	X		Medline Plus summary page
Congenital fibrosis syndrome	X	X	Engel lab at Harvard, a world-leader in genetic research about these conditions
Conjunctivitis	X	X	User-friendly patient site covering basic vision and eye health info, common complaints
Corneal abrasion	X		AAPOS medical library Q&A
Corneal abrasion	X		Summary page on Medline Plus
Cortical visual impairment	X	X	Comprehensive information from Children's Hospital, Boston
Cortical visual impairment	X		Information page on American Academy for Pediatric Ophthalmology and Strabismus website
Dacryocystocele		X	Scientific case report-based page with radiological findings, embryology as well as clinical information
Dermoid cyst	X		AAPOS medical library Q&A
Dermoid cyst		X	Brief but comprehensive eMedicine article
Diabetes mellitus	X		Comprehensive eMedicine reference
Diabetes mellitus		X	AAPOS medical library Q&A
Dissociated vertical divergence		X	AAPOS medical library Q&A
Duane syndrome	X		AAPOS medical library Q&A
Duane syndrome		X	Comprehensive eMedicine article covering the different types of Duane syndrome and management
Ehlers-Danlos syndrome	X	X	Webpage of the Ehlers-Danlos National Foundation (requires free registration for access)
Esotropia, accommodative	X		AAPOS medical library Q&A
Esotropia, accommodative		X	eMedicine article geared towards both consumers and clinicians
Esotropia, acquired		X	Clinician-oriented eMedicine article with information on management
Esotropia, congenital/infantile	X		AAPOS medical library Q&A
Esotropia, congenital/infantile		X	Clinician-oriented eMedicine article with evidence-based information on treatment strategies
Esotropia, high AC/A	X	X	eMedicine article directed towards both patients/parents and clinicians
Exotropia	X		AAPOS medical library Q&A
Exotropia		X	Clinician-oriented eMedicine article with information on management
Fourth nerve palsy	X		AAPOS medical library Q&A
Fourth nerve palsy		X	Clinician-oriented eMedicine article with information on surgical management
General medicine	X		Consumer-oriented health information resource sponsored by the National Library of Medicine. On-line medical dictionary, encyclopedia, and drug information as well as links to organizations, publications, and libraries
General reference	X		Sponsored by the Nemours Medical Foundation, age-appropriate general pediatric health information for parents, teens, and younger children
General pediatric ophthalmology	X		Topic list for the AAPOS medical library including two FAQ's in Spanish (ambliopia, cataract)
Genetic diseases		X	Online Mendelian Inheritance in Man (OMIM) - Encyclopledic coverage of diseases with known gene mappings; includes syndrome descriptions and current research findings; medical orientation, but families may find helpful information about specific conditions
Glaucoma, congenital/infantile	X		AAPOS medical library Q&A
Glaucoma, congenital/infantile		X	Clinician-oriented eMedicine article with information on surgical management
Headaches, children's	X	X	Mayo Clinic headache information page
Headaches, children's	X		Detailed description of children's headaches by type from the National Headache Foundation
Horner syndrome	X		Consumer-friendly topic page on Medline Plus
Hyperopia	X		User-friendly patient site discussing refractive errors (may need to install Adobe Flash for animation)
Hyphema		X	eMedicine article directed primarily toward clinicians
Hyphema	X		More patient-friendly description of problems associated with this type of eye injury
Incontinentia pigmenti	X		More patient-friendly presentation of this topic (multiple pages and links)
Incontinentia pigmenti		X	Thorough eMedicine article with information on genetics, stages, and pictures
Informacion en Espanol	X		Enfermedades atendidas - catarata congénita, glaucoma congénito, estrabismo, retinoblastoma, retinopatía del prematuro.
Iritis/uveitis	X	X	More patient-friendly presentation with links for additional details
Iritis/uveitis		X	eMedicine article providing a general review of uveitis
Juvenile rheumatoid arthritis	X	X	Informative website by the American College of Rheumatology with links to further information and resources for patients
Keratoconus	X	X	National Keratoconus Foundation website with information, links to support groups, online discussion
Learning disabilities	X	X	Comprehensive site containing extensive information about all aspects of learning disabilities
Learning disabilities	X	X	Resources for parents of children with learning disabilities sponsored by the Schwab Foundation for Learning
Leber's amaurosis	X		AAPOS medical library Q&A
Leber’s amaurosis	X	X	Wonderbaby.org Q&A's with numerous links
Marcus-Gunn jaw-wink ptosis	X	X	EyePlastics page covering condition as well as surgical management alternatives
Marcus-Gunn jaw-winking ptosis		X	eMedicine article with clinician-oriented information
Marfan syndrome	X		AAPOS medical library Q&A
Marfan syndrome		X	Clinician-oriented eMedicine article
Molluscum contagiosum	X		AAPOS medical library Q&A
Monocular elevation deficiency	X		AAPOS medical library Q&A
Myasthenia gravis	X	X	Q&A from the National Institute of Neurological Disorders and Stroke
Myasthenia gravis	X		AAPOS medical library Q&A
Myopia	X		User-friendly patient site covering basic vision and common complaints (may need Adobe Flash for animation)
Nasolacrimal duct obstruction	X		AAPOS medical library Q&A
Nasolacrimal duct obstruction, congenital		X	eMedicine article covering the different congenital anomalies causing nasolacrimal duct obstruction, management
Nystagmus, congenital	X		AAPOS medical library Q&A
Nystagmus, congenital		X	Comprehensive eMedicine article with coverage of associated conditions, testing, management
Optic nerve atrophy	X	X	HealthAtoZ website with comprehensive, user-friendly coverage with etiologies, diagnosis, resources
Optic nerve drusen	X		AAPOS medical library Q&A
Optic nerve hypoplasia	X		AAPOS medical library Q&A
Optic nerve hypoplasia	X	X	Summary page including teaching strategies for visually impaired children
Optic neuritis	X	X	Mayo Clinic information for patients and healthcare personnel
Optic neuritis	X		AAPOS medical library Q&A
Pediatric ophthalmology	X		American Association for Pediatric Ophthalmology and Strabismus home page
Penetrating injury (open globe)	X		Patient-oriented page with pictures before and after surgical management
Penetrating injury (open globe)		X	eMedicine article with information geared towards management in the ER
Pseudoesotropia	X		AAPOS medical library Q&A
Pseudoesotropia	X	X	Brief but comprehensive eMedicine topic page
Pterygium			Brief information page by the American Association for Pediatric Ophthalmology and Strabismus (AAPOS) with pictures
Ptosis, congenital	X		AAPOS medical library Q&A
Ptosis, congenital		X	Comprehensive information with information on associated conditions, management
Rare disorders	X	X	National Organization for Rare Disorders (NORD) website with catalogue of over 1100 diseases catalogued with brief descriptions and links to support groups if available (fee for download about specific condition - similar info available at no charge from OMIM)
Refractive errors	X		User-friendly coverage on myopia, hyperopia, and astigmatism by the Children’s Hospital Boston
Retinitis pigmentosa	X		AAPOS medical library Q&A
Retinitis pigmentosa		X	eMedicine article with information on associated conditions, genetics, links to further information
Retinoblastoma	X		Comprehensive parent’s guide with information on diagnosis, treatment, genetics, facts, pictures; includes Spanish tranlation
Retinoblastoma	X		AAPOS medical library Q&A
Retinopathy of prematurity		X	Clinician-oriented website by the Schepens Retina Associates Foundation with a description of ROP, the stages, and treatment
Retinopathy of prematurity	X	X	Retinopathy of Prematurity & Related Diseases (ROPARD) website providing information on ROP as well as low-vision resources
Retinoschisis, juvenile	X		AAPOS medical library Q&A
Rhabdomyosarcoma	X	X	Comprehensive, user-friendly information for parents by the Children’s Hospital Boston
Sixth nerve palsy	X		AAPOS medical library Q&A
Sixth nerve palsy		X	Comprehensive, clinician-oriented eMedicine topic page with emphasis on management
Strabismus surgery	X		Brief, easy-to-understand description of the different surgical procedures with diagrams from the AAPOS websute
Strabismus, A-pattern		X	Thorough, clinician-oriented eMedicine information page
Strabismus, V-pattern		X	Thorough, clinician-oriented eMedicine information page
Third nerve palsy	X		AAPOS medical library Q&A
Third nerve palsy		X	Comprehensive, clinician-oriented eMedicine topic page with emphasis on diagnosis
Thyroid eye disease	X		AAPOS medical library Q&A
Thyroid eye disease		X	Comprehensive, clinician-oriented eMedicine article with information on features, pathophysiology, diagnosis, testing etc.
Visual impairment	X		Webpage by the National Federation of the Blind, National Organization of Parents of Blind Children with links to further information, support/resources, research